Sudden unexpected death in epilepsy (SUDEP) can be at any level of seizure disorder from what is considered benign with centrotemporal spikes to intractable. Clinical features looked for in SUDEP-young adult age, medication nonadherence, frequent tonic clonic seizures-may or may not be present. Some occur in those thought to be treatment responsive or a benign epilepsy. The possibility should be known to patients and stress the importance of taking medications on time, not skipping doses and taking correct dosage.
There is an incidence rate of 1.20/1000 person-years. Median age 26 but can go from 1-70. Most were male and white. Some had even been free of seizures the previous year. Only 16% had heard of SUDEP before their family member had died.